Research Corner

Hello! Are you a genetic counselor who speaks Spanish fluently and has experience counseling Latine patients with support persons present? You are invited to participate in a study exploring the role, impact, and challenges of support persons at genetic counseling appointments of Latine patients. This study seeks to quantify their roles, assess their impact with key areas of the genetic counseling appointment, and explore related challenges of support persons that attend Latine patients’ genetic counseling appointments. An electronic survey will take ~15 minutes via Qualtrics. Participants have the option to enter into a raffle to win one of two gift cards. Click on this link for the survey and for more information: Qualtrics | Perspectives of Spanish-Speaking Genetic Counselors Thank you in advance! 

Greetings! I'm inviting all current and former adult oncology GCs to participate in a research project exploring adult oncology GCs' involvement in discussions about medical assistance in dying (MAID) with patients in the United States.

MAID refers to the practice in which a qualified healthcare provider assists a terminally ill patient in ending their own life through prescribed medications. Due to the eligibility criteria, most individuals pursuing MAID are cancer patients.

As MAID becomes increasingly available across the U.S., oncology patients with advanced cancer may seek support from their healthcare providers, including genetic counselors. However, little is known about how genetic counselors are involved in these conversations or how prepared they feel to navigate them. This study aims to assess the prevalence and context of MAID discussions between oncology genetic counselors and their patients, as well as factors that may influence GC participation in these conversations. The study was approved…

The United Multiple Sulfatase Foundation student ambassador program is amazing. Applications are now being accepted until July15. For any questions, please contact me

curemsd.org

You are invited to participate in a voluntary research study to explore how genetic counselors perceive the usage of humor in clinical practice. Study participation involves an online survey that is estimated to take about 15 minutes to complete. Survey questions will assess genetic counselors’ perspectives on humor, when it is best used, and when it is best avoided. Participants can even learn their own personal humorstyle! Our goal is to establish a baseline assessment of the utilization of humor in genetic counselors’ practice to help better inform education and practice moving forward. Please contact Kristin Maloney (PI) at kmaloney1@som.umaryland.edu with any questions. 

Survey Link: https://umaryland.az1.qualtrics.com/jfe/form/SV_8AgfEJwfY7MJ8RU