Hi all,
Just posting this event I have been a part of planning! Really think this will be a fantastic event. Please see below for more information.
Hope to see some of you there!
Itzel
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Seeing Beyond the Diagnosis: Life with Mito
Greetings!
I'm looking for a roommate to share a hotel room for the conference! I'll be driving up North with another GC who already has a roommate. I'm sure we'll have room for one more in the car! I don't get reimbursement for travel, but I'm happy to split things evenly! I'll be there Wednesday-Friday, heading home Friday night.
If you'd like to connect to see if it might work, please reach out on my cell: 805-657-9672.
Tara Jones (she/her)
Many of you know that I have stopped supporting ACMG for the last few years when they refused to support the GC efforts to get our Federal Bill passed. Today I learned that they now are supporting our efforts. This is very important to show Federal agencies and legislators that we have the support of the entire genetics community. Attached is the ACMG announcement. Thanks, Michelle Fox
August 11, 2025
In anticipation of the introduction of the Access to Genetic Counselor Services Act of 2025, the ACMG would like to update our members about our position regarding the bill.
The bill proposes a modification to the Social Security Act that would formally recognize genetic counselors as qualified healthcare professionals, thereby allowing for reimbursement of their services under Medicare.
July 30th is MSD World Day, and as a genetic counselor and board member of the United MSD Foundation, I'm reaching out to my colleagues in the field. Multiple Sulfatase Deficiency (MSD) is incredibly rare – so rare that many of us may never encounter a case in our practice.
Despite its rarity, the impact on affected families is profound. With long diagnostic journeys and no treatments available, there's an incredible opportunity for us, as a community, to drive awareness and support the vital work of organizations like the United MSD Foundation to find solutions.
Here’s how you can make an impact right now:
Donate to accelerate research and help families access life-changing clinical trials: https://secure.qgiv.com/for/2025msdworldday/
Wear BLUE or grab MSD World Day gear to show your support: https://curemsd.org/msd-world-day/
Follow @CureMSD on all social media platforms and share their content to raise awareness